Sapphire water, Red Cliffs and burned skin

Today I am feeling a little sorry for myself. It is nice every so often to have a little pity party. In fact I sometimes ask Scott to say over and over to me... "Poor Missy" because it ends up making me laugh because I have so many blessings and really no complaints. I am in a great deal of pain. I got sever burns on my face, neck, arms and feet at Lake Powell. I am overly cautious in the sun. I always take tons of precaution. So what went wrong? Well I had to stay cool, it was over 100 degrees with no wind. I thought OK I will stay wet on top of the house boat under cover of complete shade. I did not think about the reflection of the harmful rays bouncing off the lake water or the top of the painted white house boat. Guess what? You can get a sever burn from a reflection. The kids helped me all day by dumping buckets of water on top of me or hosing me with squirt guns. It wasn't until late in the day when I noticed a bad heat rash all over my body and I started to feel ill. Up to that point it had been a little slice of heaven. I think being in water is the best thing in the entire world. Not pool water with chemicals nor ocean water with sticky salt but clean lake water. I thrill at the thought of jumping into the deep blue water and looking into the depths of 100s of feet. I love the towering cliffs above my head and floating with the gentle waves. My dad used to call me his little fish, his little mermaid. It was always next to impossible to get me out of the water. I would always swim in the cover of shade from the boat or the cliffs with long sleeves, sunglasses, and sun screen. The stars are absolutely amazing out there. We slept on top of the boat with the sky as our cover. It is out of this world bliss. I grew up going to Lake Powell. I was always careful to stay cool and stay out of the sun. This is my first burn from the Lake I love so much. When the doctor saw me he yelled at me... "what were you thinking going to Lake Powell?" Aunt Sue yelled at me "I told you, you had no business going to that Lake, I hope you have learned your lesson." What lesson is that? That I am a freak? That I am different? That I can't do normal things? That I can't enjoy life when sun or heat in involved? That I have Lupus. I guess I knew these thing already. But Scott makes me feel like living. Like trying new things. Like forgetting my body is sick and can't do normal things. I felt awful for the family who had to drive me 2 hours back to the marina ($526.00 of extra gas) so I could get to a doctor. The stress of all of it left Scott with a bad case of shingles. I also burned my eyes. You see the first time I jumped into the water I forgot I had my sunglasses on. They sank into the icy blue. So now we wait and see what damage I have done. My kidneys are iffy, my skin is damaged very bad. So now I wait, while I toss and turn with the imagined waves that I had loved over the last 4 days. I wonder what they are all up to at this moment while I sit in bed far away from the lake I love. Plus I miss Evan my swim buddy. He was the only one brave enough to jump in with me. The water was cold.